Comments on: Post Tubal Ligation Syndrome: Past and Present

By: Dr. Berger

Dr. Berger — Wed, 16 Sep 2009 21:24:06 +0000

LYNESSA - Why don't you take advantage the free consultation with a tubal reversal nurse to discuss Post Tubal Ligation Syndrome (PTLS)? You can discuss this with one of our nurses by calling (919) 968-4656.

By: Lynessa

Lynessa — Wed, 16 Sep 2009 17:30:12 +0000

I was 20 when I got my tubes clipped and burned. I had 3 already at that time. Since then, I am very unpredictable. It’s almost an ongoing joke in the household. I hardly have energy to do anything. My moods are my main concern. But I also have extreme cramping and it’s almost like i can put my finger int he exact pot. I have had to pull over in my car because the pain was so unbearable I couldn’t see straight. I get tingles and numbness down my right leg because of my periods. I can go from 5 to 12 days bleeding and the first couple days are horrendous for me. I’d be lucky if I can get out of the bed. I’m not a weak cookie either. On my last c-section I was up making my own bed, and walking around fine the same day. Yes it hurt, but I could handle it. These cramps bring me to tears and loud sobs!! I suffer back and forth with anemia. My hair would come out in clups and leave bald patches so I thought I had alopecia, then it just started coming out from everywhere. Still is. Rage, uncontrollably crying. I cry for everything. Good and bad! I want this fixed. What can we do to get this recognized and studied. I feel like we all need to do something. I at the same time feel helpless. Ugh..

By: Anonymous

Anonymous — Mon, 08 Jun 2009 04:56:16 +0000

I had my tubal igation done when I had my third child she is now 7 years old . I have been suffering from very heavy periods ,clotting ,dizziness, anxiety etc. My doctor told me it has nothing to do withthe “clips” I really need some answers. I live in a small town full of “quacks”.

By: bridget

bridget — Tue, 12 May 2009 01:12:08 +0000

I had my tubal ligation in March of 2009. My first period was only 3 days later. That one was very heavy, huge clots. The next month was strange. I have been bleeding pretty much every day. Mostly spotting and just enough to be annoying! Sometimes, out of the blue, I need a tampon. My biggest complaint is it makes my “romantic” life a bit difficult. I had it done so I wouldn’t have to worry about pregnancy. I am 42 and a widowed mom of 2. I had blood clots with pregnancy so I am unable to use any hormonal birth control. I figured this was the best!! But I never know what to expect. I am hoping I will develop a “cycle” again eventually…. any hope there?

By: Mrs Fields

Mrs Fields — Sun, 21 Dec 2008 10:35:59 +0000

I am a 26 year old woman.I had the filshie clips for for 5 years now. I have had some really rough times since ..bleeding ..depression..guilt.Honestly I cannot say I felt this way before I had this procedure done..I have scheduled a consult with my new doctor in Hawaii to see if I can get my clips removed at the earliest convenience..Exercise feels like a pulling muscle inside ..I cannot even bend without a regular pain..I think their should be another effective way of sterilization without the drama…

By: Charles Monteith MD

Charles Monteith MD — Wed, 26 Nov 2008 13:37:02 +0000

If you go to the Getting Started page on our website, it will give you step-by-step instructions about how to proceed. Please contact Julia Smith, RN at JuliaS@tubal-reversal.net for further assistance.

By: brok3n

brok3n — Wed, 26 Nov 2008 03:48:22 +0000

I had a TL 10 years ago. I was only 22 years old. I was convinced that this was the way to go.
Since then, I have been suffering and I’m tired of it! I can’t tell you how many times I have had to leave work and change my clothes because I bleed all the way down to my knees. I’m so embarrased! My periods are always so heavy and painful! I always pass huge blood clots. I wear a combination of super tampons and overnight maxi pads. I have been tempted to wear Depends underwear! I’m starting to cramp all month long! I have gained so much weight! I’m always so exhausted! I have constant headaches! I’m angry that doctors and insurance companies do not recognize that this is a problem. I can not afford to reverse the damage that has been done to my body! I want this reversed. If anyone knows a way out, please contact me.

drew.kimberly@gmail.com

By: Amber

Amber — Mon, 20 Oct 2008 16:12:33 +0000

Gosh, I have been having all of these symptoms for almost 5 years now and after reading these articles and responses not only have I finally tied them all together, I know I’m not alone and maybe I can have some relief. Every month I have debilitating pains when I ovulate lasting anywhere from 2-6 hours. Just last period I asked my husband, “what’s the difference between hemoraging and heavy bleeding from my period?” It was awful and we nearly considered going to urgent care things were so bad for about a day of my period. It is on and off like this every month. Sometimes not so bad, sometimes, worse. This all not to mention my migraines around 18 in a month. That’s right. I’m miserable and sick of trying to figure out “what caused this one”. I did recently start Topomax, which has helped some, but, I want to know what is causing them. Add all that to the fact that I work my *%$ off at the gym and eat healthily and it ‘aint going nowhere! Truly! I keep thinking there’s got to be some reason, I’ve just gotten exhausted trying to figure it all out. This all connects it. My youngest is 5 next month. I had my tubes tied when she was born and that is just about when I recall noticing all these issues! Thank you for this information I truly want to look more into all of this! Maybe there is a solution out there. ~

By: Brooke

Brooke — Tue, 14 Oct 2008 18:24:41 +0000

I have been online for the last few hours researching PTLS. As with many others whose posts I’ve read; I had both a midwife and a doctor who told me there were NO side effects of TL. I had my TL done in March 2005, 2 mos after my youngest son was born. Due to breastfeeding I didn’t get a period until approx Jan 2006 and very soon after the symptoms of PTLS began. Very heavy periods with very large clots, periods arriving at varying intervals of time (prior they arrived at the exact same time each month), sometimes a month with no period at all, severe cramping, headaches, nausea, severe mood swings, feelings of dread, increased anxiety, and basically feeling like I was going crazy which all continues to this day. Prior to meeting my soon to be husband, I had already contacted Chapel Hill looking into a reversal, not because I wanted more children but because of the symptoms of PTLS. Now that I’ve met him I planned on getting the TR due to the symptoms but our desire to potentially have another baby after we’re married is also now part of the equation. However, even if we didn’t desire the potential of more children I would still get a TR in hopes that I could get myself and my body back to “normal”. It saddens and angers me that the medical community discounts PTLS and that so many women are suffering needlessly from this syndrome. However, it heartens me to know that I’m not the only one and that I may not be going crazy after all! As soon as we can afford to do so I will be scheduling my TR with Chapel Hill, hopefully next Spring after our wedding. Once it’s done I would be happy to keep anyone interested posted on any relief I experience. Good luck and God bless to everyone suffering with PTLS~

By: rose

rose — Thu, 25 Sep 2008 01:49:01 +0000

I honestly believe in PTLS. I had no problem with periods, no cramps, no real depression, no headaches. The moment after my tubaligation my life – changed, migraines, moodiness, irritability, horrible cramping with periods and bad PMS. For those of us who have this, it is real, not just a symptom to be ignored. I am planning on have a reversal asap. I thank God for these doctors who are out there that want to help women. Thank you for making it affordable. Thank you for your courage work in fertility. God bless, you, and your staff.

By: Kathy

Kathy — Fri, 12 Sep 2008 19:40:03 +0000

It’s good to read a little history on the data of PTLS and to see that the past research has been limited at best. The articles to come will open doors for those patients who have been suffering and with helpful information, there can be a beginning to happier health.

By: Dr. Berger

Dr. Berger — Fri, 12 Sep 2008 19:10:10 +0000

Most doctors discount the histories of women who report sudden changes in their menstrual patterns or other symptoms following a tubal ligation procedure. The CREST study is a significant factor in the general medical opinion that “there is no such thing” as Post Tubal Ligation Syndrome. Yet at Chapel Hill Tubal Reversal Center we hear story after story of changes reported by many patients starting after their tubal ligation; some of these women want their tubes untied to alleviate their symptoms. There is obviously a discrepancy between the conclusions of CREST and what we are hearing from many patients.

I hope that as this series of articles about PTLS will provide some insights regarding this discrepancy between the experiences of many women and some of the medical studies that exist. I also wonder if it would be better to use the abbreviation “PTLS” to stand for “Post Tubal Ligation Symptoms”. This might avoid getting into controversy with other doctors about whether there is a true “syndrome”. I am looking forward to the forthcoming articles that are being prepared by Dr. Monteith.

By: Rhonda Brown RN

Rhonda Brown RN — Fri, 12 Sep 2008 00:24:04 +0000

I am glad to see physicians who are willing to do research and provide information on a topic that is so often overlooked by other health care professionals. I think that this is a great service to lots of women out there.

By: Sally,RN

Sally,RN — Thu, 11 Sep 2008 19:04:54 +0000

I’m sure our patients will have an interest in reading all 14 parts of the series on PTLS. There is so little information on this subject. Education is the key to patients making informed decisions about their health and well being.

By: Matt M

Matt M — Thu, 11 Sep 2008 17:33:53 +0000

Very interesting stuff. I know that many women come here complaining of problems that resemble PTLS. Most say after their tubal reversal that they notice a huge change for the better in the way they feel. We will continue are study here and keep you all informed.