Tubal Reversal Blog ‘migraines’

I am a Registered Nurse and have worked most of my career in Cardiac Surgery Intensive Care Unit. I took a three year break and worked in Labor and Delivery and really loved that, as you can imagine…EVERY day was THE best day of each of my patient’s lives. I loved being a part of it and was emotional during just about all of my deliveries! My husband is a wealth builder…he owns his own financial firm and does investment/financial advising.

We have a happy family with 5 children and would feel blessed with another child biologically or through adoption; unfortunately both of us were sterilized during our previous marriages. No one ever plans for their spouse to leave, their marriage to be torn apart, and be left infertile. As my new husband and I had very similar stories, morals and beliefs and united in marriage and family, we thought long and hard about adding to our family to essentially “tie” our children together with a half sibling– so that when they are older and we are gone, they will still be close and not drift apart. This is what led me to do my research about tubal reversal surgery and what led me to Chapel Hill Tubal Reversal Center.

Before this point, I had NO IDEA that Post Tubal Ligation Syndrome (PTLS) existed and I did not know all of my many symptoms were probably linked together due to the decision I made to have my tubes tied in 2003 after the birth of my daughter. I researched PTLS even further and found a very long list of symptoms and just cried as I showed the list to my husband one night. I was literally astounded.

I remember my mom telling me before I had my tubal ligation she had always heard a “Tubal ligation makes you have much more severe cramps and heavier periods”.

I asked my OB/GYN this question as I was making my decision (I worked with this doctor in L&D at the time) and she said this was not true at all. It is evident that many physicians do not recognize PTLS as a true syndrome and it’s saddening. I am very blessed that my husband empathized with me and all the symptoms I had and supported me in having the tubal reversal for symptom relief, without a second thought. I had my tubal reversal 7/31/08 and if it is God’s plan to add to our family, He can provide that miracle…but if not or until then…I am extremely happy to have had the opportunity to be “reconnected” by Dr. Monteith.

Below is a list of symptoms that I found on a PTLS website and I listed the symptoms I have (there were many, many more).

1. Bouts of rapid heart rate: In 2005, I was having palpations so frequently that I saw a cardiologist that I worked with at the time. He did a stress echo, which was fine, but placed me on a beta blocker medication due to the symptoms interfering with my everyday life. I have since weaned off of the medication myself and it only happens on occasion now.

2. Irritability/mood swings/PMS: I was never this bad before…I’m a very pleasant, laid back person and the past 4 years or so, my PMS symptoms have increased in length more and more until it was about 2 weeks long, and it would go away two or three days after my cycle was over.

3. Trouble sleeping thru the night: Absolutely! I have had severe insomnia since 2003 or 2004. Of course, my doctor gave me another pill to help this symptom…but I hate having such trouble sleeping and try not to take the medicine. I have tried hypnosis, herbs, melatonin, Benadryl, and acupuncture…many things other than using the prescription medicine.

4. Irregular periods: Not so much irregular, meaning I have 25-28 day cycles, but HEAVY and EXTREMELY painful…To the point of being doubled over in pain for the first two days of my cycle and curled up in a ball. It’s worse than any labor I had before I had to have my C-section. A couple of years ago, I would bleed up to 11-14 days every month and I was advised to have a hysterectomy due to the pain and bleeding. Being age 32 at the time, I refused to go that route.

5. Anxiety: I was never a very anxious person before. I have had increased anxiety, to the point I talked to my doctor about it (I was also going through a difficult time)…and was given yet another medication to try. It did help, but it was an antidepressant used for anxiety and was very hard for me to get off of once I decided I did not want to be on medication anymore.

6. Decreased energy: My energy level has dropped so much, but I just figured it was from getting older. I’ve never been a morning person, but this is much worse…it’s like constantly being tired and sluggish.

7. Feelings of doom/apprehension/despair: Some months, not all (especially a couple years back), my PMS symptoms are so severe, that it makes me think very sad thoughts…and it’s always about 2 days at the end of my cycle (which is the same point my migraines come as well…so it could be related).

8. Depression: I’ve had some bouts of what I call depression (non diagnosed) over the last few years…my “depression” is more in the form of anxiety/overwhelming feelings and wanting to sleep and not face anyone.

9. Headaches: Migraines…I used to have them in college when I was on birth control pills. Finally, when they figured out it was probably the hormones and I came off the birth control pills; I did not have any more migraines, until AFTER my tubal ligation. I’ve been on a migraine medication for over a year and use a different one if it gets out of hand. They can be debilitating.

10. Weight gain: I have had a very difficult time trying to lose my ‘baby weight’ from my last pregnancy from 2003 and tubal ligation. Although I had always been proportioned before, the worst of my weight now is around the middle.

11. GI problems: I have had reflux or heartburn since my tubal ligation as well.

I have only had one cycle since my tubal reversal, so I will be watching for much symptom relief!

A complete discussion of Post Tubal Ligation Syndrome and the stories of other PTLS patients who have undergone tubal reversal can be seen in our blog series on PTLS. The first of fourteen articles is Pain After Tubal Ligation: A Symptom of Post Tubal Ligation Syndrome? .

Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Katherine

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

At the age of 32, Rebecca underwent a tubal ligation in 1995. Within one year, she began to notice worsening menstrual symptoms which were attributed to Post Tubal Ligation Syndrome (PTLS). She dealt with these symptoms for 12 years before deciding to undergo tubal ligation reversal surgery.

Her story prior to tubal ligation reversal can be read in the article entitled Meet Rebecca. Rebecca reported her symptoms after tubal ligation as:

Loss of libido
Losing more that the normal amount of hair daily
Unexplained Weight gain
Loss of sexual arousal
Loss of natural lubrication
Painful intercourse
Depression
Isolation
Spotting
Heavier cycles
Unexplained Joint pain
Migraine headaches
Severe Mood Swings
Severe Temperature fluctuations

Rebecca’s Tubal Reversal Surgery

Rebecca underwent an outpatient tubal ligation reversal in July 2008. Drs Berger and Monteith performed her surgery. Rebecca’s fallopian tubes were found to be in good condition and she had a successful bilateral, microsurgical tubotubal anastamosis. Her surgery lasted 88 minutes. She was subsequently released to the local Sheraton hotel, was seen the next day by a Chapel Hill Tubal Reversal Center staff member, and was then discharged to home. She has recovered from reversal surgery without any complications.

Rebecca After Surgery

Rebecca’s report on her symptoms since having reversal surgery:

As far as my symptoms at this point:
I believe it is too early to really notice any changes but here are the few that I am aware of this month.
I am thinking about intimacy once again and I feel that my libido is coming back.
Intercourse was not painful.
My headache this month lasted only one day.
My moods are still erratic and my hair continues to fall out.
I plan to keep track of my feelings, including the desire for intimacy, and sexual arousal signs; in addition to other symptoms.
I believe hormone testing is important before and after a tubal reversal. Perhaps every 3 to 6 months along with keeping a journal of menstrual symptoms.

CHTRC Series of Worsening Menstrual Problems After Tubal Ligation

This is the twelfth article in our fourteen part series on PTLS and associated medical conditions. Our first article, Pain After Tubes Tied: Symptom of Post Tubal Ligation Syndrome?, reviews symptoms associated with PTLS.

Our next several articles will continue to present patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures ( women who had their tubes tied).

Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Praybelieving
Meet Katherine

We invite readers to join our Tubal Reversal Message Board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Andrea describes her recovery and improvement of symptoms after tubal ligation reversal surgery. Her story prior to ligation reversal is Meet Andrea.

Andrea after tubal reversal surgery in her own words…

I had my tubal ligation reversal surgery on 7/30/08. I was on my second day of my period that day. After surgery, I bled for only four more days!

This past month was the first month I had NO migraine or cluster headaches, no odd bleeding or cramping, and I have now started my period. I started right on time, and had tolerable cramps with NORMAL moderate blood flow. This isn’t the blood flow that has caused me to leave in the middle of church-weak, nauseated and pale. I am so very happy that I can live without the exhaustion of anemia during my period, and not live in fear that one time will just be too heavy to be OK. I don’t have to live with the pain, constant moisture, showering 2-3 times a day and clotting.

Most importantly, I’ve given God control over my body. I don’t have to cry and grieve over the loss of a possible future child, nor do I have to cry over the pain and turmoil my physical body is in.

Andrea has exciting news…

Andrea has become pregnant almost two months after her tubal ligation reversal! Her baby is in her uterus and things seem to be progressing well.

The staff of CHTRC wishes Andrea and her family good luck with their first tubal reversal baby. Undoubtedly, there is nothing like a pregnancy to cure bad menstrual periods!

This is the tenth article in our fourteen part series on PTLS and associated medical conditions. Our first article, Pain After Tubes Tied: Symptom of Post Tubal Ligation Syndrome?, reviews symptoms associated with PTLS.

Our next several articles will present patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures ( women who had their tubes tied).

Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join our Tubal Reversal Message Board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

My name is Andrea, and I’m a 31 year-old home schooling mother to four children.

I’m married to my partner in Christ, Jeff, who is 36. Jeff has his own CPA practice here near our home. We live in beautiful Coeur d’ Alene Idaho, where we are a very close knit Christian family.

In 2005, against the advice of my doctor and with my husband cautioning against it, I had a Filshie clip tubal ligation at the planned c-section birth of my daughter. My doctor used clips because of my age at the time of tubal ligation, as well as the fact that he believed I would want more kids based on my nature.

Soon after the birth of my daughter, I began experiencing symptoms that independently wouldn’t have been alarming, but when gathered together, had me very worried and feeling terrible. Early after the birth, I felt very sad about not having more children. At times I thought the symptoms were just because I was sad about ending my fertility. Now I know they are separate, as well as the desire to continue to have more children, even if you already have “more than normal”, is a God given desire, and NOT something BAD.As my symptoms began to mount, I began a journal of NEW symptoms for me. While one or two of these may not be abnormal, each one of these was new for me, and together made a host of symptoms.

· Period returned 3 weeks after post-partum bleeding, despite breastfeeding full time.    The earliest I had a period while breastfeeding before was 8 months!

· Cyclical migraines or cluster headaches. Typically, one in the week before my period, one upon my period leaving, and one mid-cycle. Each took up to 4 days to clear completely, and each required prescription medication. Nausea and vomiting would accompany without treatment.

· First time I couldn’t lose my baby weight through breastfeeding, diet and exercise.

· Highly emotional, and easily brought to tears or sadness.

· Extremely dry skin.

· Mid-cycle cramping and breast tenderness.

· Terrible cramping for 1-2 days of menstruation, with moderate cramping before bleeding starts, with light cramping entire period. I’m a very active woman with high pain tolerance. This cramping was enough to nearly bring me to tears.

· Bleeding so severely, I would soak a pad in an hour. My doctor suspected menstrual anemia.

· Bleeding sometimes mid-cycle. Spotting would begin on CD 23-24 and continue through 28 when heavy period would start. Bleeding would last 7 full days, with spotting another 2-3 at the end.

· Persistent yeast infections, presumably from being “damp” due to having to wear pads much of the month to catch unexpected flow.

When looking at this journal, I sought the advice of my OB/Gyn and family physician. Both doctors acknowledged tubal ligation can and often does cause painful and heavy periods. However, my family physician went a step further. She conveyed that she had heard numerous cases of women having severe problems following tubal ligation, and was fully on board in my seeking a reversal. She did hormone screening and other blood work, and my OB/Gyn performed a pelvic ultrasound to rule out endometriosis, infections, fibroids, cancers and cysts. Both doctors gave me a clean bill of health, with no other cause for my new problems. Both doctors wrote to my insurance company, requesting payment for a tubal reversal on the sole basis of Post Tubal Ligation Syndrome (PTLS).

The insurance company, a national and well-known provider, wrote back these words:

“Although a tubal ligation reversal is medically necessary for the health of the insured, tubal reversals are not covered as the code falls under fertility treatment which is excluded. *Named insurance company* will authorize payment for treatments of hormone therapy, ablation, D&C and hysterectomy.”

Obviously, at 29 years old and also seriously mourning the loss of my fertility, these were not acceptable treatments for the physical manifestations of my tubal ligation.

We began the process of searching out the best doctor to perform a tubal ligation reversal, and saving the funds to do so. Some local physician’s, including my own, perform tubal ligation reversal. However, I was unable to feel satisfied about the outcome since none maintained accurate PTLS relief and pregnancy statistics based on their own work. Doctor’s in the Seattle area also do tubal ligation reversal, as well as many other cities in the nation. The local doctor’s were going to cost us about $12,000. Even with travel from Northern Idaho, Chapel Hill Tubal Reversal Center was a more affordable, and a more highly skilled facility.

Post Tubal Ligation Syndrome Series

This is the ninth article in our fourteen part series on PTLS and associated medical conditions. The first article, Pain After Tubes Tied: A Symptom of Post Tubal Ligation Syndrome?, introduces the most common symptoms some women attribute to their tubal ligation.

Readers can also read Andrea’s after surgery follow-up story: Andrea After Tubal Ligation Reversal Surgery. In addition to telling us how she has done after her tubal ligation reversal, she also has some exciting news to share!

Our next several articles will present personal stories of some of our patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures ( women who had their tubes tied).

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.