Tubal Reversal Blog ‘reversal surgery’

Rebecca’s experience with Post Tubal Ligation Syndrome in her own words…

My name is Rebecca and I am 45 years old. My husband’s name is Dana and he is 47.

I have a BA in Elementary Education. After teaching, I chose to stay at home the past twelve years with my daughter. I have home schooled her for the past 7 years. At the present time, I design and sew costumes for ballets and other performances.

My husband has a BS in Industrial Engineering. He works for a non-profit organization. He works as a liaison between the government and manufacturers that hire individuals with disabilities, in particular those who are blind.

We have been married for 26 years. We have four children. Two sons, ages 25 and 22 and two daughters ages 23 and 12. We have a grandson (4) and granddaughter (2) by our daughter, who is married to a wonderful man.

I had the tubal ligation in 1995 after the birth of my daughter. Just prior to this pregnancy I had a miscarriage. This put a scare into my husband. It was a pretty nasty miscarriage and although the next pregnancy was fine, he was concerned for my health and future pregnancy’s in addition to the age factor. I had my daughter at the age of 32. I did regret the tubal ligation. I felt I had interfered with God’s plan for my life. However, this I had come to terms with.

I found Chapel Hill Tubal Reversal Center in 1999. However, I did not read the message boards because I thought it was selfish of me to even think of spending that kind of money (for reversal surgery). The thought of a tubal ligation reversal went to bottom of the priority list. Life went on for the next 12 years. I finally began reading the boards and realized how many other women had suffered what I had and that there was hope by having a reversal.

I was approximately 33 when the symptoms of Post Tubal Ligation Syndrome (PTLS) began to show up. It is only after researching PTLS and reading my journals I realized my symptoms were very similar and often times identical to many other women out there. When the symptoms did show up I did not realize what the “condition was”. I thought what I was going through was part of the aging process.

The first thing to go was the desire for intimacy. This included a diversion to intercourse. I was unable to produce any signs of arousal, including cervical mucus. Intercourse became painful and had never been so before.

Doctors told me I had endometriosis, when in fact I did not.They also told me it was because of my tipped uterus. Not so. A tipped uterus has nothing to do with arousal. I told myself it was age, and the fact that I had born four children.

My moods became very erratic. I would blow up at the least little thing. Then moments later I would be fine. I would get depressed and have no desire to be around people.

This was not me; I love interaction and being around people. The saddest part about the erratic mood swings was the very real possibility that my husband may get fed up with me and all we had would be lost. It felt as if I had no control over my emotional state of mind, as if my world was crumbling and the only way to fix it was to take anti-depressants. This was not an option for me.

I began to get migraine headaches prior to my menstrual flow.

Severe headaches. They would last up to four to five days. I had never had headaches. My hair began to fall out. That began happening almost immediately. Again I thought that was normal.

Although I was very active, I began to put on weight around the age of 35. I began to get night sweats. One moment I would be cold then sweating profusely. My joints began to ache. I got unexplained joint pain. I was even diagnosed with tendinitis at the age of 35 (I do not play tennis). My doctor could not figure this out.

My menstrual cycle stayed at 28-day cycles, lasting about 7 days. Typically 3 days heavy 4 days light. However, they also began to be much heavier for longer than 3 days, and I began to experience spot bleeding. I would believe my cycle was over and then I would begin to bleed again about 3 days past my cycle. I didn’t say anything to the doctor; I was too concerned he would say I needed a “hysterectomy“. Or they would tell me that I was preparing to go into menopause. My friends even had me convinced that I was in the early stages of menopause.

I had been told for so long that everything that was happening to me was because of early menopause; I have a tendency to question if PTLS is real. That is why when I read the stories on CHTRC’s message boards about PTLS; I came to realize it is real…

Rebecca’s after surgery story can be viewed on the following blog article entitled Rebecca After Tubal Ligation Reversal.

CHTRC Series of Worsening Menstrual Problems After Tubal Ligation

This is the eleventh article in our fourteen part series on PTLS and associated medical conditions. Our first article, Pain After Tubes Tied: Symptom of Post Tubal Ligation Syndrome?, reviews symptoms associated with PTLS.

Our next several articles will continue to present patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures ( women who had their tubes tied).

We invite readers to join our Tubal Reversal Message Board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Momzilla came to us at Chapel Hill Tubal Reversal Center seeking relief of problems that occurred after her tubal ligation. Momzilla is her sign-on name for the tubal reversal message board. She is 43 years old, happily married, and has three children. She is employed as a human resource manager and her husband is an attorney.

Momzilla had her tubal ligation three years ago and she describes the gradual onset of Post Tubal Ligation Symptoms (PTLS) after her tubal ligation. We asked her if we could use her as the subject of a blog featuring several of our patients. She agreed and provided us a comprehensive list of her physical problems.

Her symptoms in her own words…

“Longer clotty periods with a day or so of flooding blood followed by nothing and then bleeding again. (My menstrual periods from the dawn of time prior to that had been regular and predictable to almost the day), horrible insomnia, light-headedness/dizziness (almost passing out on a few occasions), exaggerated PMS and mood swings, absence of libido and an aversion to sex, fatigue, a sense of dread or doom (not depression), withdrawal from my family (almost needing isolation from people), inability to concentrate, fogginess and an awful memory, tingling in extremities, very dry skin no matter how much I drink or how much lotion I used, more frequent headaches, bloating and GI issues, inability to lose my baby weight (I lost my waist), breaking hair that is more oily, breaking nails, changes in perspiration and body odor (sweating and smelling more easily), bad taste in my mouth, more sinusitis and allergies…I think that about covers it..”

She also had told us she had tingling in her legs, which required her to see a neurologist and have a brain MRI. She also had increased sugar cravings and gained 15 lbs.

Momzilla told us her story of having a tubal ligation and then noticing the onset of these symptoms. She has seen several doctors and had a variety of inconclusive tests. She found information about PTLS on the Internet and discovered Chapel Hill Tubal Reversal Center as well. She was very clear she was not getting a ligation reversal so she could have more kids. She was trying to get her body to be like it was prior to the ligation. She desired a return to her normal state.

I am happy to report Momzilla had a successful tubal ligation reversal on June 2, 2008. Her surgery went well and was performed by Drs. Berger and Monteith. She had good tubal lengths and did well in the recovery room. She was released to the local Sheraton hotel for an overnight stay and was discharged home the next morning. She has recovered without any complications.

Readers can read about Momzilla’s after surgery report: Momzilla Reveals Her True Identity.

We will also publish reports on patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures (women who had their tubes tied).

We invite readers to join our Tubal reversal message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Many women who have had a tubal ligation find themselves considering tubal ligation reversal. We have patients who come to Chapel Hill Tubal Reversal Center from all areas of the United States, Europe and Asia for ligation reversal procedures. They come to have their tubes untied for a variety of reasons. Many patients have told us about the frustration they felt when talking to their ob/gyn doctors about tubal ligation reversal or to a reproductive specialist who recommended only in-vitro fertilization (IVF). Many patients have also said their doctors minimize their concerns about symptoms they developed after having their tubes tied.

We recently published a blog about why some doctors may have negative opinions regarding ligation reversal surgery: Why your doctor may be cold to the idea of tubal ligation reversal. We also went to our message board and asked our patients and prospective patients about personal experiences with their physicians when talking about ligation reversal surgery. There we found out that many doctors were very supportive of their patient’s desire to have reversal surgery. The responses can be read under the message board topic: Share your doctors’ attitudes about tubal ligation reversal. Please feel free to leave your story about your experience when seeking reversal surgery or your doctor’s attitude toward the surgery. To leave comments on the Tubal Reversal Doctors Blog, please register and then log in (right hand column). Alternatively, you can add posts to the message board topics shown above.

At Chapel Hill Tubal Reversal Center, we are committed to providing you with the information you want to know about. That’s why the Chapel Hill Tubal Reversal team welcome your ideas, questions and comments. Whether you’re wondering about tubal reversal pregnancy rates, PTLS or how to talk to your doctor about having your tubes untied, we want to be able to address your concerns about tubal ligation reversal.

Submitted by Dr. Charles Monteith
DrMonteith@tubal-reversal.net

Submitted by Dr. Monteith
Chapel Hill Tubal Reversal Center

Many doctors will give you less than a warm response when you ask about tubal ligation reversal. Ever wonder why?

I would like to use myself as an example. I started my obstetrics and gynecology (ob/gyn) residency in July 1997 and finished in June 2001. I never saw a single tubal reversal operation performed at the university where I trained. Not one. I saw many unusual and rare things, but I never saw a tubal ligation reversal. I am not alone. Many other doctors would probably tell you the same thing if you asked them.

Lack of Familiarity or Training

Most doctors- especially those who have trained within the last 15 years – are unfamiliar with tubal ligation reversal. The reason is simple. Ligation reversal is considered elective surgery. As a result, these procedures are rarely done in hospitals. Therefore, doctors in training get little or no exposure to these surgical procedures. Because of this, most doctors have little knowledge about these types of operations.

Sometimes doctors in training will reason that if they never saw a particular operation, the surgery does not exist because it is not beneficial and may even be harmful. Of course, this is faulty reasoning.

I would have never thought ligation reversal is an effective surgery if it were not for a three minute experience I had when I was a second year resident doing my reproductive endocrinology rotation.

I was with a physician who was the head of our reproductive endocrinology department. We were counseling a 38-year-old patient who was married, had a tubal ligation and wanted to become pregnant again. At the conclusion of her visit, she had asked what she should do? Since I had seen every patient with fallopian tube problems treated with in-vitro fertilization (IVF), I mumbled to myself, “We are going to recommend you get IVF.” Before I could finish my mumbled response, the director said, “I recommend you get a tubal ligation reversal.” My mouth dropped open! Why did we recommend an operation that we did not perform and one I had never seen? I remember exactly what he said next, “We can do this procedure for you. The cost of tubal reversal will be $15,000 here at the hospital. I recommend you talk with Dr. Gary Berger, a tubal reversal specialist who does them for considerably less cost.”

After the conversation, I asked him why we didn’t do tubal reversal procedures at our hospital. He responded, “Charles, we have to charge patients more for this surgery in the hospital. Since patients have to pay out of pocket, most people will be unable to afford the surgery with us. This is a great procedure for her because she will have the ability to get pregnant many times.”

“But isn’t the success rate less than 50 percent?”, I asked. He dropped his glasses down, looked over the rims and told me in a very direct voice, “No! In the best of hands, the success rate is 80 percent.” Somehow he seemed offended that I thought he had recommended a bad treatment.

This conversation happened in 1998. I filed this brief exchange in my memory and mostly forgot about it for the rest of my training.

Other Mistaken Ideas Doctors May Have

Many doctors might say a general ob/gyn resident would not see any of these surgeries while training, but a doctor in training as a reproductive endocrinologist would. Unfortunately, this is not true. I had two friends who trained to be reproductive endocrinology specialists. One did two tubal reversals over a three year period of training, the other did none.

It is unfortunate that my friends, who had little or no experience with reversal surgery, are going to be the same doctors who will counsel patients about it. No wonder they routinely recommend IVF – a treatment that they received almost exclusive training in during their fellowship programs.

Why I Came to Chapel Hill Tubal Reversal Center

I hope my personal experience can illustrate why general ob/gyn doctors may not support their patients who want to have their tubal ligations reversed, and why reproductive specialists mostly do IVF. I view tubal ligation reversal as a disappearing surgical skill that may not be available to patients in the future. This is why I asked to join Dr. Berger’s staff at Chapel Hill Tubal Reversal Center. To help women with tubal ligations who want to get pregnant is the reason why I have decided to embark on the path to become a tubal ligation reversal specialist.

Dr. Montieth’s Diary on Becoming a Tubal Reversal Specialist

Today we had another successful day of untying tubes. We began the day at 7AM. Four patients were scheduled for tubal ligation reversal surgery.

I was able to first assist Dr. Berger in the first three surgeries of the day, but had to leave prior to the fourth surgery. I am becoming proficient at identifying tubal anatomy and repairing tubes that have been tied.

The first patient had her tubes tied several years ago and she was now in a new relationship. Both she and her partner desired more children. They made the decision that they would undergo tubal ligation reversal and try to pursue their dream of having children together. Her surgery went well and we were able to successfully reverse her tubal ligation.

The second patient was similar to the first and desired more children. Her surgery also went well.

The third patient had her tubes tied, but after her surgery she lost a child to Sudden Infant Death Syndrome (SIDS). We often hear stories like this from many patients who come to Chapel Hill Tubal Reversal Center. It is extremely sad to hear the stories these patients tell. My heart aches for them as they try to replace their children and add to their family. Every time I hear these stories I think of my own children and what it would be like to experience such a loss. I can not fully imagine the pain from such loss but I can understand the strong desire to replace a cherished soul. I am happy to report that her surgery went extremely well and she had an excellent operative result. I take enjoyment out of every reversal surgery I have participated in, and feel an extra sense of accomplishment when assisting in untying tubes for patients who have lost children unexpectedly.

I had to leave before the fourth patient had surgery. Fortunately, I will be back in the morning for four more reversal surgeries and to meet four more interesting people and learn about their stories.