Tubal Reversal Blog ‘women’

It is difficult to identify the first reported instance of a patient with Post Tubal Ligation syndrome (PTLS). The early literature from the 1950 – 1970’s has sporadic reports of patients who underwent tubal ligation and, subsequently, developed menstrual irregularities. In the mid – twentieth century, PTLS seems to have been discussed more that it was studied by the medical community.

Several medical studies from the 1980’s and 1990’s suggested there was no association with tubal ligation and menstral irregularities. These studies have been criticized because they involved a small number of patients, had methodological problems, and were not designed to critically evaluate for the existence of PTLS.

U.S. Collaborative Review of Sterilization Study

The most conclusive medical study to evaluate female sterilization and the effects upon American women was the U.S. Collaborative Review of Sterilization study. This study is commonly referred to as the CREST study. A synopsis of this study can be found on-line at the medical research organization Contraception Online.

The CREST study conducted by the Center for Disease Control and Preventions (CDC) and was published in the New England Journal of Medicine in 1996. To date, the CREST study has been the largest and most comprehensive evaluation of women who have undergone surgical sterilization in the United States. The study was primarily designed to evaluate the types of sterilization methods that were commonly being performed by U.S. doctors and the failure rates associated with each of the different methods of sterilization.

The study examined over 14,000 women who had tubal sterilizations (tubal ligation) from 1978 to 1986. Women were examined for up to 14 years after their sterilization procedures. The investigators specifically looked at the method of tubal ligation and failure rates (pregnancies) based on each method. They also examined the number of women who regretted their decision to undergo sterilization.

CREST  Findings

The main findings of the CREST study were that pregnancies after tubal ligation and sterilization regret were both more frequent than had been previously thought.

Women were also asked questions about changes in their menstral patterns after tubal ligation. The study compared 9514 women who underwent tubal ligation to 573 women whose partners underwent vasectomy. The women were asked about changes in their menstral patterns for up to five years after sterilization. The women who underwent sterilization were found to have fewer irregularities with their menstral patterns. The authors’ conclusion was there were no significant differences in menstral patterns in women who had tubal sterilization. A commentary by the study investigators regarding these findings can be found at the National Institute of Health.

The existence of Post Tubal Ligation syndrome has been widely speculated by many but never substantiated in a rigorous fashion by medical investigators. Many poorly done small studies have suggested PTLS does exist; however, the largest study to date, the CREST study seems to suggest otherwise.

Limitations of the CREST Study

Although the CREST study has been the largest study with the longest follow-up of women who have undergone sterilization, some investigators have criticized the study.

The CREST study has limitations evaluating PTLS because of three reasons:

1. The study population is mostly from academic centers and is made up of a large number of African American women. This has led some cautious medical investigators to suggest the study has population bias and the findings of the study may not be applicable to the general population of United States women who undergo sterilization.

2. The study did not address the question whether women may develop menstral irregularities beyond five years after their tubal ligaiton. Most of the questions regarding menstrual irregularities were not asked after five years of follow-up.

3. The study was not designed to investigate the diverse symptoms of PTLS. The primary goal was to identify what the most popular methods of tubal ligation were and what the failure rates of each method were.

If PTLS does not exist then what is going on?

Many patients come to Chapel Hill Tubal Reversal Center requesting sterilization reversal for the sole purpose of treating symptoms they identify as PTLS. Many of these patients report substantial improvement in their symptoms after tubal ligation reversal. We are not certain why patients report improvement, but it is hard to ignore their reports of improvement in symptoms after ligation reversal surgery.

Most women who have tubal ligations will not have any problems. Some women will have difficulty after a tubal ligation. Many, or perhaps the majority of them will not have PTLS. Instead, they may have an underlying medical or gynecologic illness. To aid our patients in the evaluation of difficulties they may be having after a tubal ligation, our next article will have information for patients about abnormal bleeding, painful menstruation, and possible underlying causes.

This is the second article in a fourteen part series. Our third article in this series is Diagnosing Menstrual Problems After Tubal Ligation.

Readers can also view patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join the  Tubal Reversal Message Board where they can discuss and share personal experiences with tubal ligation. We also would like patients to join our PTLS Forum and share personal experiences regarding physical or mental symptoms noticed after tubal ligation.

Women come from all over the world to Chapel Hill Tubal Reversal Center for reversing tied tubes – or more correctly put in medical terms, to have a tubal anastomosis. The majority of our patients desire sterilization reversal so they may naturally conceive more children. Many others, however, have ligation reversals to feel more complete again and/or to alleviate symptoms that have occurred after their surgical sterilization procedure. These patients report new physical and psychological symptoms after undergoing tubal ligation – symptoms that have been described as Post Tubal Ligation Syndrome (PTLS).

Symptoms of Post Tubal Ligation Syndrome

There are many symptoms attributable to PTLS. The most predominant symptoms are:

• Menstrual pattern changes
• Painful periods
• Hot flashes
• Irritability
• Mood swings
• Insomnia
• Decreased sex drive
• Anxiety
• Depression
• Memory changes

Does PTLS really exist?

The existence of Post Tubal Ligation Syndrome has been very controversial within the medical community. Early medical studies suggested that some sterilized women (women who had their tubes tied) had abrupt changes in bodily symptoms after their surgical procedures. These physical and mental changes were called Post Tubal Ligation Syndrome.

PTLS has been widely talked about by both women and medical professionals. Currently, PTLS information, advice, and ‘expert’ commentary saturate the internet. Conspiracy theories are prominent. Some people even believe sterilization is being forced upon women and there is a conspiracy, or lack of serious medical counseling, regarding the symptoms of PTLS.

More recent medical research has demonstrated that women do have changes in their menstrual patterns after tubal ligation; however, these changes are not as dramatic or as widespread as have been suggested in the past.

Observations from the Tubal Reversal Center

The tubal ligation reversal experts at Chapel Hill Tubal Reversal Center provide sterilization reversal to a large number of women from across the world. We also counsel and treat a substantial number of women who attribute their worsening menstrual patterns to their tubal ligation procedures. These patients report a multitude of PTLS symptoms.

We like for our patients to be well-informed. Since women seeking relief of PTLS represent an increasing percentage of the patient population we care for, we would like to dedicate a series of informative blog articles discussing the concept of PTLS. More specifically, we would like to discuss the common medical reasons for new symptoms noticed after tubal ligation, current understanding about PTLS, and common psychological conditions which can mimic PTLS.

This is article first of a fourteen part series. Our second article in this series is Post Tubal Ligation Syndrome: Past and Present.

Readers can also view patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join the Tubal Reversal Message Board to discuss and share their personal experiences with tubal ligation. Feel free to contribute to our PTLS forum dedicated to patients who have personal insight into worsening symptoms after undergoing tubal ligation.

Editorial Comment

The decision to add a series of articles about Post Tubal Ligation Syndrome on the Tubal Reversal Blog was prompted by requests and suggestions of many of our tubal reversal patients. Most doctors have been taught that no such entity as PTLS exists, much to the exasperation of women who are suffering from symptoms that began after a tubal sterilization. This series of blog articles will allow individuals to report about their personal experiences and case histories. Then, articles from the medical literature will be reviewed and discussed. Hopefully, this approach will help explain the discrepancy between what individual women have experienced and what medical doctors think about this complex subject. I encourage both patients and medical professionals to contribute their insights and opinions to this important series of articles.

Gary S. Berger, MD
Medical Director
Chapel Hill Tubal Reversal Center

My First Day at Nourishing Hopes and Dreams

My first day as a tubal ligation reversal specialist will always be remembered. I began my training with Dr. Berger during the first week of January 2008. We started the day off by meeting the patients who would be undergoing tubal ligation reversal at Chapel Hill Tubal Reversal Center. I met four patients of different ages, backgrounds, and ethnicities . They were all very different people who all desired the same thing: reversal of their tubal ligation.

• The first patient was in her forties, she had emigrated from Ethiopia, her last child was more than twelve years ago, and she desired a chance to have another child.
• The second patient was in her thirties and her previous husband had died unexpectedly. She had children but her fiancé did not have any children. Together, they desired a child.
• The third patient,in her late twenties, had two children and a tubal ligation. Several years later she subsequently found a new partner and he desired a child with her. So while he was deployed overseas, she came for a tubal ligation and a chance for a new future when he returned from his military deployment.
• The fourth patient was in her late twenties and had several children. When she and her partner were in their early twenties they were financially maxed out and she had her tubes tied as an act of desperation. Several years later, she and her husband subsequently became financially stable and they wanted another child. They considered IVF but decided that a reversal was a better option for them. We also learned of an extremely sad story from this patient. She had a friend who had a tubal ligation. This friend had all of her four children die overnight in a house fire. This friend desperately has hope for a future reversal of her tubal ligation and was hoping to obtain a tubal reversal in the future.

All of the tubal reversal surgeries went well that day. The patients all did well and had technically excellent tubotubal reanastamosis (tubal ligation reversal) procedures. They all recovered well and went home to pursue their quest to add to their families. For as long as a live, I will never be able to forget these women, their partners and the stories they told. I can never forget their quest to add children to their lives. For them I hope they attain what they desire. My first lesson as a Tubal Reversal Specialist was that no one can predict the future, but if you always look hard enough you can always find a way – and someone to help- to correct prior mistakes.

After my first meeting with Dr. Berger, I drove home and was ecstatic our conversation went so well. I did not know what to expect when I first visited the center but my visit was everything I could have hoped for. Immediately when I got home I told my wife about my experience. I had never told her about my previous dream so I also divulged to her my vision about my visit to Chapel Hill Tubal Reversal Center. She was amazed I even had such a dream because she is aware I am not a very superstitious person. To this day we still can not believe I had a dream foretelling the start of a new career.

Dr. Berger and I had several more meetings after our initial meeting. I was able to explain to him my career frustrations and my desire to become a tubal ligation reversal specialist. I was able to learn more about him, his background in infertility and in vitro fertilization, and his evolution towards becoming an exclusive provider of tubal ligation reversal surgery. Our meetings were productive and I became even more certain I wanted to become a specialist in tubal ligation reversal.

As I began to seriously consider transitioning to become a tubal ligation reversal specialist I began to realize several things about myself:

• As a physician I want to help people. I especially enjoy helping people obtain goals which are not easily available.
• I take enjoyment in doing surgeries other doctors are either afraid of or incapable of doing.
• I value letting patients make their own informed decisions. I have never felt the need to impose my beliefs upon other people. I rarely judge the decisions of others.
• I dislike hospitals. I feel they are unhealthy (for patients and doctors) and are loud, noisy places.
• I really enjoy working in outpatient, ambulatory surgery centers. I feel less confined than in the hospital environment.
• I like to be efficient. Being idle is extremely difficult for me.
• I can not take good care of others if I can not take good care of myself and family. Long nights, weekends, and poor medical outcomes began to gnaw away at one’s humanity and compassion.

It has been almost a year since I first met Dr. Berger and the staff at the Chapel Hill Tubal Reversal Center and started my path towards becoming a reversal specialist. I have realized many things about myself and my desires. I am eagerly looking forward to a career in helping women correct the misgivings of prior decisions.