Comments on: PTLS (Post Tubal Ligation Syndrome)

By: chasmonteith

chasmonteith — Thu, 20 Oct 2011 01:28:04 +0000

Nathalie
Many of our patients report improvement after reversal. Approximately 80% will improve after reversal. We do have many patients who come from other countries.

By: Nathalie

Nathalie — Wed, 19 Oct 2011 17:33:05 +0000

I had a tubal ligation done when my second child was born. It was basically a desperate decision after a miserable, awful pregnancy and I’ve regretted it ever since. Since her birth 18 months ago, I’ve been dealing with what I thought was post-partum depression, but with all the other symptoms (headaches, insomnia, exhaustion to the point that I can’t even function, spotting that goes on and on for over two weeks whenever I have my period, mood swings, bouts of crying that I can’t control, ongoing depression, etc.) I’ve started thinking that it’s something else. And then I came across PTLS. This was never mentioned to me by my doctor, and neither was the possibility of damage to the ovaries or hormone imbalances or early menopause. At this point I can’t even summon the energy to be angry. I’m just devastated, and so very, very tired. I just want my life back. I just want to be “me” again, and I just want my babies to have their “real” mommy back. :-(

I’m waiting for blood test results for iron, thyroid and hormone levels, and I’ve also contacted the hospital to request the post-op reports for my surgery. When the doctor told me what was involved he said he clamps the tubes, cuts a section out and then cauterizes the ends. Does this sound like something that can be reversed or am I out of luck? I am so scared that permanent damage has been done to my ovaries and that even if a reversal is possible, it will not fix things. Also, can patients from other countries come to this centre?

By: karina

karina — Sat, 17 Sep 2011 08:42:26 +0000

I also had a BLT Ligation in 2010 after my 3rd , my baby is a year and a half, soon after I stopped breast feeding I started to experience severe PMS _(emotions sky rocket , moods , cryin spells) I noticed a pattern that was very consistant the last year. and ovulation pains every 14 days after my period, never fails. I have alot of crackin in my joints and an have fatigue before mentrual cycle. I brough it up to my obgyn and he suggested i try the nuva ring to balance hormones, i guess i will try it tonight dince i just ended my period. I am ok during my period. its ovulation then down hill till i blled. Im fine while on my period..all emotion release. Yoga & exercise help alot too.

By: Ginger

Ginger — Wed, 20 Jul 2011 16:17:23 +0000

In respomse to the “coils falling out” yes. I have 1 located in my uterus. The left is still in tact. I had the Essure done in May 2010 the same time I had the Nova sure. Because of the nova sure I had to have some type of birth control but little did I know I was getting an Essure. I was told I was getting my “tubes tied” a “tubal ligation”. i was not even familiar with the term Essure! Imagine my surprise. Yes, I signed the surgical consent so I don’t have any legal ground on which to stand on. I am experiencing all the mood swings, hair loss, days in bed, loss of energy, etc. and although their is no longer a visible menstrual period I still experience all the physical pain, much more than before the procedures.
so, having said all that, I got an unwanted procedure and now a titanium coil in my uterus causing pain and PTLS. There have been many complaints so it’s my belief/hope that insurances will start recognizing this as a real medical issue/illness.

By: channon

channon — Tue, 14 Jun 2011 01:17:09 +0000

Has anyone heard of anyone springs fall out? What is this coil made of? Can this material that the coil is made of ever cause infections?

By: channon

channon — Tue, 14 Jun 2011 01:12:05 +0000

Thank you to all that shared your stories, I also im suffering from this terrible experince! I feel as if we were used as lab rats!!! I feel so stupid that I allowed someone to stick something into my body without really knowing what it is! If we can prove that this is causing medical problems due to the procedure, can we get help from our insurace company to help pay to get this new health problem fixed??

By: Nichole

Nichole — Fri, 06 May 2011 07:34:49 +0000

Thank you for your story. I just had my tubal ligation in October of 2010 after I had my fourth child. Since then I’ve gained 30lbs, mainly in my waist,hips and thighs. My periods are very heavy and irregular. My joints ache all the time. I feel like I’m 60 when I will only be 30 in June. Libido is gone, and my mood swings are crazy. I’m so mad, because I asked my OBGYN about the side effects and was told there were none. I wish I would have researched it on my own before making the decision to have it done. Until researching it after the fact I had never heard of PTLS. I hope one day I’ll be able to afford this procedure so I can have my body back.

By: Rene

Rene — Tue, 03 May 2011 21:20:42 +0000

Thank you for your story. I am 43 and had twins 16 months ago by ceserean. I had them do a tubal ligation after delivery. I have fatigue, hips ache, feet and ankles hurt, my periods are heavier then they have ever been, incontinence, severe itching, mild depression and anxiety and hair loss. I was relating everything post partum issues and my age. I was put on bed rest and had my twins at 36 weeks. I was thinking the pregnancy just took a toll on my body because of my age. I was trying to research my symptoms and came across this. I was never informed of any side effects of having tubal ligation. Now I am starting to think this might be the answer.

By: Tam

Tam — Wed, 27 Apr 2011 02:02:57 +0000

Wow!…A couple of weeks ago my husband and I decided to look into getting a tubal reversal to have a baby,found this web sight and started the process. Just over the last couple of days I’ve been reading testimonials and came across yours.I can relate ( I feel like you were talking about me)I’m 31 years old and have 3 beautiful children with my ex and got remarried 2yrs ago.Right after my last baby was born I got my tubal ligation. Shortly after that about 11 months my husband at the time admitted he was having an affair ….DEPRESSION right then other symptoms no sleeping, soar joints, weak, exstreme bloating and stabbing pain when ovulating,headaches…I could list more.My family Dr.sent me to alot of specialists came down to “it was all in my head” his exact words.I haven’t seen him since. I found a Dr. who does research he didn’t give up on me (been seeing him now for 3.5 yrs)Just in the last 8 months I thought we found an Answer. He checked my B-12 levels (average is 800-900) I was at 263.was so happy thought we got our answer.Taking B-12 supplements and All my symptoms are still there.feel like they’re getting worse as time goes by…So After reading your testimonial I know with all my heart this PTLS has to be it.I hope and PRAY my medical release form I’m sending in here shortly will be a candidate for surgery and I’ll be in North Carolina before I know it.We would Love to have a baby together but more then anything I would Love my new husband to exsperience the real me (not sick all the time)and ENJOY my new life.

By: Nicole

Nicole — Fri, 24 Dec 2010 07:33:28 +0000

Thank you for your story. I have been thinking I was crazy and even my doctor thinks I'm crazy. I am tired of being in pain. I am making the decision to go to Dr. Berger.

By: Stacy

Stacy — Mon, 26 Oct 2009 15:24:05 +0000

Thank you so much for sharing your experience. Right now it feels like no doctor will ever really listen to me and understand what I'm trying to tell them, but you're living proof that there are some doctors that will. I know now that all my horrible symptoms are a result of my tubal ligation. It was the worst uniformed decision I ever made! I will be pursuing going to Dr. Berger to get this fixed. Thanks again for sharing your experience. I know there's hope now.

By: Mrs. Gray

Mrs. Gray — Mon, 31 Aug 2009 15:28:20 +0000

I have been dealing with some very similar tubal ligation side effects for the last 6 years, they have seemed to get worse and no doctor has been able to help me. Like you the only thing they have managed to do is put me on birth control pills and pain medications. I am truly not going to give up, I am miserable and always feeling sick.

Thanks this article has really helped me.

By: Sharon

Sharon — Tue, 18 Aug 2009 21:12:44 +0000

Thank you so much for your story. After having a tubal ligation a year ago, I am a changed person both physically and emotionally. I desperately want a reversal but I also want to fight this and get the word out there. So many people are suffering from things that were never disclosed to them as risks and are made to think they are going crazy!! Thank you again!

By: David Sanchez

David Sanchez — Sun, 10 May 2009 05:57:40 +0000

This is a wonderful story. Thanks for sharing it. There are many woman that will benefit from your experience.

By: Carolyn

Carolyn — Thu, 07 May 2009 21:39:42 +0000

Thank you sooo much for your story! It was like you were writing about MY SYMPTOMS. I am currently saving for the surgery, primarily because of PTLS (self-diagnosed) which was never mentioned before getting my tubes tied (of course we also want another child). My doctor, too, doesn’t buy it. He told me I was just getting older. But WE know our bodies. I recently changed my OBGYN. Good luck to everyone on their surgeries!

By: Iris

Iris — Wed, 29 Apr 2009 15:11:03 +0000

Thank you SO much for your story! I also had a tubal ligation four years ago and cannot wait to have the TR done. Thank you!

By: Moore

Moore — Fri, 24 Apr 2009 23:57:46 +0000

Thank you for your story. I thought it was only me. I just can not wait for the day that I can finally afford this surgery and end my pain and suffering. Thank You