Tubal Reversal Blog ‘pain’

Katherine is planning to be a future reversal patient of Chapel Hill Tubal Reversal Center in the fall of 2008. She discovered us while searching the Internet.

Here Katharine tells her story in her own words…

My ligation was two years ago. A month later, while getting ready for a wedding, I destroyed my bathroom upstairs in my home!

My boyfriend was in total shock! He flew up the stairs to see what in the world was going on up there. I had a “fit of rage”. It was awful. It is still very embarrassing to talk about. I do not have a history of mental illness or mood disorders. This ‘fit’ was extremely terrifying for me and for my boyfriend. After calming myself enough to grab the phone, I called my gynecologist. It was a Saturday and the Doctor on call suggested I seek psychiatric help.

Still shaking, and holding the phone in my lap…I thought for a moment…”Maybe I am crazy.”
Needless to say I never made it to the wedding, as I was afraid that I might have another “episode”. A few months later…my boyfriend moved out because he never knew what kind of woman he would come home to. The sad part is I’d wake up and wonder what kind of woman I would be that day. My instinct told me the tubal ligation was the cause of my emotional instability. I just knew it. It was intuition.

I made an appointment with the Doctor who performed the ligation (Filshie clips). When my name was called, I was ushered into the Nurse’s office instead of my Doctor’s office. The nurse explained the Doctor heard I was there to talk about a reversal and wanted to relay to me he “does not do reversals and is not aware of any post ligation symptoms and that I should seek professional psychiatric help.” I left crying.

I then called a psychiatrist who put me on Depakote, Lamectil and Klonopin. I informed her I have Post Tubal Ligation Syndrome (PTLS) symptoms PTLS, but I think she feels I’m bi-polar. The medication does help with the violent mood swings and depression.

The main symptoms are:

daily headaches
2-week PMS
7-8 day HEAVY periods (pass clots the size of walnuts)
anxiety, panic attacks, depression
pitting edema in ankles
fits of rage
uncontrollable crying spells
during ovulation..I have to sit on a pillow while driving and can’t sit flat on my chair at work. Pain with walking
sharp pains in my right side
pain during and after sex (especially after…I curl up in ball and suffer)

I have a small 10-acre farm with horses, dogs, and cats and soon…pigs! I don’t have time to be a pain ridden Tasmanian devil. I love my job, my family, my farm and it is so hard to enjoy it all when PTLS rules my life. I feel all of this is about to change now that I have found Chapel Hill Tubal Reversal Center!

Most importantly…My boyfriend and I have started dating again after a year apart. I showed him all of the emails, websites, etc that explain why I am the way I am…

A complete discussion of Post Tubal Ligation Syndrome and the stories of other PTLS patients who have undergone tubal reversal can be seen in our blog series on PTLS. The first of fourteen articles is Pain After Tubal Ligation: A Symptom of Post Tubal Ligation Syndrome? .

Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Praybelieving

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Women come from all over the world to Chapel Hill Tubal Reversal Center for reversing tied tubes – or more correctly put in medical terms, to have a tubal anastomosis. The majority of our patients desire sterilization reversal so they may naturally conceive more children. Many others, however, have ligation reversals to feel more complete again and/or to alleviate symptoms that have occurred after their surgical sterilization procedure. These patients report new physical and psychological symptoms after undergoing tubal ligation – symptoms that have been described as Post Tubal Ligation Syndrome (PTLS).

Symptoms of Post Tubal Ligation Syndrome

There are many symptoms attributable to PTLS. The most predominant symptoms are:

• Menstrual pattern changes
• Painful periods
• Hot flashes
• Irritability
• Mood swings
• Insomnia
• Decreased sex drive
• Anxiety
• Depression
• Memory changes

Does PTLS really exist?

The existence of Post Tubal Ligation Syndrome has been very controversial within the medical community. Early medical studies suggested that some sterilized women (women who had their tubes tied) had abrupt changes in bodily symptoms after their surgical procedures. These physical and mental changes were called Post Tubal Ligation Syndrome.

PTLS has been widely talked about by both women and medical professionals. Currently, PTLS information, advice, and ‘expert’ commentary saturate the internet. Conspiracy theories are prominent. Some people even believe sterilization is being forced upon women and there is a conspiracy, or lack of serious medical counseling, regarding the symptoms of PTLS.

More recent medical research has demonstrated that women do have changes in their menstrual patterns after tubal ligation; however, these changes are not as dramatic or as widespread as have been suggested in the past.

Observations from the Tubal Reversal Center

The tubal ligation reversal experts at Chapel Hill Tubal Reversal Center provide sterilization reversal to a large number of women from across the world. We also counsel and treat a substantial number of women who attribute their worsening menstrual patterns to their tubal ligation procedures. These patients report a multitude of PTLS symptoms.

We like for our patients to be well-informed. Since women seeking relief of PTLS represent an increasing percentage of the patient population we care for, we would like to dedicate a series of informative blog articles discussing the concept of PTLS. More specifically, we would like to discuss the common medical reasons for new symptoms noticed after tubal ligation, current understanding about PTLS, and common psychological conditions which can mimic PTLS.

This is article first of a fourteen part series. Our second article in this series is Post Tubal Ligation Syndrome: Past and Present.

Readers can also view patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join the Tubal Reversal Message Board to discuss and share their personal experiences with tubal ligation. Feel free to contribute to our PTLS forum dedicated to patients who have personal insight into worsening symptoms after undergoing tubal ligation.

Editorial Comment

The decision to add a series of articles about Post Tubal Ligation Syndrome on the Tubal Reversal Blog was prompted by requests and suggestions of many of our tubal reversal patients. Most doctors have been taught that no such entity as PTLS exists, much to the exasperation of women who are suffering from symptoms that began after a tubal sterilization. This series of blog articles will allow individuals to report about their personal experiences and case histories. Then, articles from the medical literature will be reviewed and discussed. Hopefully, this approach will help explain the discrepancy between what individual women have experienced and what medical doctors think about this complex subject. I encourage both patients and medical professionals to contribute their insights and opinions to this important series of articles.

Gary S. Berger, MD
Medical Director
Chapel Hill Tubal Reversal Center

hope (hp)v.t. & i, expect or look forward to, with desire and confidence. –n. 1, confidence in a future event; expectation of something desired. 2, what is hoped for. 3, something that arouses or justifies hope.

At Chapel Hill Tubal Reversal Center, Dr. Gary Berger understands that hope is not just a word to the hundreds of women who come to his center each year. Hope is what they find in him.

When Amanda Nelson first decided to have a tubal ligation in 1997, she never imagined she would find herself in Chapel Hill, North Carolina, 4,000 miles away from her home in Cumbria, England about to undergo a tubal ligation reversal.

“I had been married for a number of years when my marriage broke down,” said Amanda. “I had two boys to look after, so I waited a year and then went ahead with my tubal ligation. At the time, the thought of having children with a different father didn’t appeal to me.”

Like Amanda, many women who come to Chapel Hill Tubal Reversal Center have faced life changes such as divorce, loss of a child or remarriage.

“Years went by, and then I met David. He had no children and happened to mention he would like one of his own some day,” said Amanda. “It took me awhile to think about it, but decided to look up having the operation.”

The couple sought the advice of Amanda’s local gynecologist. She suggested that they try in-vitro fertilization. But due to the high cost and limited chance of conceiving, the couple decided to begin researching tubal reversal surgery.

“David and I came to the conclusion that you only get one chance with IVF, and if it didn’t work, you have to start all over again,” said Amanda. “The emotional side of it and the high cost put us off.”

The Search Begins

The couple began searching online for tubal reversal specialists. Their search brought them to the Chapel Hill Tubal Reversal Center Web site and Dr. Gary Berger.

“My doctor said we would have more of a chance of getting pregnant if the surgeon had done the operation many times,” said Amanda. “ I couldn’t believe my luck when I found Dr. Berger.”

Over the past 28 years, Dr. Gary Berger has performed over 7,000 tubal reversals as a one-hour, outpatient operation. Recognized as a leader in the field, Dr. Berger has been featured on The Learning Channel and Discovery Health.

Patients come to Chapel Hill from across the United States and abroad to have him perform the procedure. Using microsurgical techniques he developed and refined, Dr. Berger can successfully repair the fallopian tubes in 98 percent of the women who want their tubes untied.

“At first it seemed silly to travel that far to have surgery,” said Amanda. “But when David and I read the Web site and learned about Dr. Berger, we knew he was the man for the job.”

On April 1, Amanda contacted the center to schedule her tubal reversal surgery. After completing the required forms and health history with a tubal reversal nurse, Amanda was ready to begin her long journey to North Carolina.

When the couple arrived at the Raleigh-Durham International Airport in late May, they were greeted by Janice Barrett of Red Carpet Coach, a transportation service that offers discounted rates to Dr. Berger’s patients.

“Janice picked us up and gave us a little tour of the town,” said Amanda. “She drove us by Dr. Berger’s office, then to the hotel. It was nice knowing we were close by.”

Dr. Berger’s patients stay at the Sheraton Chapel Hill Hotel, where they receive a discounted rate. This convenient location allows for quick and comfortable access to the hotel following surgery.

The First Meeting

On the morning of her surgery, Amanda and David arrived at the center for a patient consultation and first meeting with Dr. Berger. As Amanda describes, her first meeting with Dr. Berger was a special experience.

“I remember years ago watching a television show on the Discovery channel about a lady having the tubal reversal surgery and Dr. Berger was on it,” said Amanda. “Being on his Web site most days, I used to look at his photo and think, it won’t be long now before I’m in Chapel Hill. So when I finally met him, it just felt special…he was a star, and a humble one at that.”

Immediately following her operation, Amanda was alert and comfortable. David arrived shortly in the post-anesthesia care unit to be by her side.

“I woke up from surgery to my David, and I was in no pain,” Amanda said. “I was shocked because when I had my tubal ligation, I woke up in extreme pain, so I was really pleased. I was given time to wake up and told the good news by Dr. Berger that everything went well and my tubes were repaired.”

Most women are typically discharged from the facility within two hours after surgery. And most resume normal activities within five to 10 days. This outcome is far better for patients than the standard approach to tubal ligation reversal that requires hospitalization for several days, longer recovery times and unnecessary hospital costs.

“I didn’t experience any pain the day of my surgery,” said Amanda. “And I was able do a little sightseeing of Chapel Hill the day after my surgery.”

Home Sweet Home

After returning to England, Amanda joined the Chapel Hill Tubal Reversal Center message board. The message board is a place for patients and those interested in tubal reversal and women’s health issues to share their stories.

“The Web site is wonderful,” says Amanda. “I’ve found the message board to be very helpful, and I’ve managed to help some future patients of Dr. Berger’s that live here in the UK.”

When asked to describe her experience in Chapel Hill, Amanda gave two words…first class.

“My experience was better than I expected,” said Amanda. “David was very happy with the care I received, and I think he enjoyed the care he received, too. You don’t leave the men out, I think that’s important.”

Giving hope to patients is something Dr. Berger and his team of tubal reversal professionals doesn’t take lightly. Hope isn’t just a word; it’s their mission.

Learn More

To learn more about Dr. Gary Berger and his team at Chapel Hill Tubal Reversal Center, visit www.tubal-reversal.net or call 919.968.4656.

Submitted by Lisa Hourmouzis, RN
Tubal Reversal Nurse

Anesthesia for Tubal Ligation Reversal

Submitted by Pam Mills, CRNA

Being part of the anesthesia care team at Chapel Hill Tubal Reversal Center has given me the opportunity to work one on one with tubal reversal patients in an outpatient setting and to assure they receive the best medical care they have ever experienced.

For anesthesia purposes, we record pain scores and the incidence of postoperative nausea for all of our patients. We conduct comprehensive reviews of our data and implement changes to our anesthesia protocol, if necessary. This performance improvement activity is the beauty of working in a small private setting.

All of our patients receive individual attention and care. We have had patients tell us, “This is the first time in my life I have not been sick after anesthesia!” and “This was the easiest anesthesia I have ever had!”

I can’t think of anything more rewarding than to have helped our patients have a safe and pleasant experience while they are here for their tubal ligation reversal procedures.

Personalized Anesthesia Plan

If a patient tells me that she experienced nausea after an anesthetic in the past, I sit down with her and discuss our anesthesia plan and how it is designed to optimize her comfort and well being during her postoperative recovery. I want her to be confident that she will be well taken care of and that we will do everything in our power to make this anesthetic different from what she experienced previously. Our patients receive two medications through their IV to prevent nausea, and for patients with special needs I give what is is fondly referred to as my “special cocktail”. This cocktail has a combination of two additional anti-nausea medications, also given through the IV before the patient wakes up. This covers all the possible trigger centers in the body that can cause nausea.

Power of Positive Thinking

I usually end our discussion of postoperative nausea by telling the patient and family member that this will be the last we will mention of this subject, as I am a firm believer in planting the seed of positive thought. So from then on I want them to focus on positive thinking, knowing that she will be well taken care of and anticipating that she will wake up feeling well and free of pain or nausea.

Patient Care at Chapel Hill Tubal Reversal Center

Our dedication to patient care and outcome is evident in our patient follow up care. Every patient is entered into our computerized database. This database includes information from the day of surgery, their postoperative recovery, follow upcontacts by our nurses, as well as every pregnancy following the tubal reversal procedure through to its outcome. There is no better place for women to have tubal reversal surgery than at Chapel Hill Tubal Reversal Center. Our anesthesia staff goes to extra lengths to ensure the patient’s safety, comfort, and sense of well-being during and after the tubal reversal procedure.