Tubal Reversal Blog ‘symptoms’

I am a Registered Nurse and have worked most of my career in Cardiac Surgery Intensive Care Unit. I took a three year break and worked in Labor and Delivery and really loved that, as you can imagine…EVERY day was THE best day of each of my patient’s lives. I loved being a part of it and was emotional during just about all of my deliveries! My husband is a wealth builder…he owns his own financial firm and does investment/financial advising.

We have a happy family with 5 children and would feel blessed with another child biologically or through adoption; unfortunately both of us were sterilized during our previous marriages. No one ever plans for their spouse to leave, their marriage to be torn apart, and be left infertile. As my new husband and I had very similar stories, morals and beliefs and united in marriage and family, we thought long and hard about adding to our family to essentially “tie” our children together with a half sibling– so that when they are older and we are gone, they will still be close and not drift apart. This is what led me to do my research about tubal reversal surgery and what led me to Chapel Hill Tubal Reversal Center.

Before this point, I had NO IDEA that Post Tubal Ligation Syndrome (PTLS) existed and I did not know all of my many symptoms were probably linked together due to the decision I made to have my tubes tied in 2003 after the birth of my daughter. I researched PTLS even further and found a very long list of symptoms and just cried as I showed the list to my husband one night. I was literally astounded.

I remember my mom telling me before I had my tubal ligation she had always heard a “Tubal ligation makes you have much more severe cramps and heavier periods”.

I asked my OB/GYN this question as I was making my decision (I worked with this doctor in L&D at the time) and she said this was not true at all. It is evident that many physicians do not recognize PTLS as a true syndrome and it’s saddening. I am very blessed that my husband empathized with me and all the symptoms I had and supported me in having the tubal reversal for symptom relief, without a second thought. I had my tubal reversal 7/31/08 and if it is God’s plan to add to our family, He can provide that miracle…but if not or until then…I am extremely happy to have had the opportunity to be “reconnected” by Dr. Monteith.

Below is a list of symptoms that I found on a PTLS website and I listed the symptoms I have (there were many, many more).

1. Bouts of rapid heart rate: In 2005, I was having palpations so frequently that I saw a cardiologist that I worked with at the time. He did a stress echo, which was fine, but placed me on a beta blocker medication due to the symptoms interfering with my everyday life. I have since weaned off of the medication myself and it only happens on occasion now.

2. Irritability/mood swings/PMS: I was never this bad before…I’m a very pleasant, laid back person and the past 4 years or so, my PMS symptoms have increased in length more and more until it was about 2 weeks long, and it would go away two or three days after my cycle was over.

3. Trouble sleeping thru the night: Absolutely! I have had severe insomnia since 2003 or 2004. Of course, my doctor gave me another pill to help this symptom…but I hate having such trouble sleeping and try not to take the medicine. I have tried hypnosis, herbs, melatonin, Benadryl, and acupuncture…many things other than using the prescription medicine.

4. Irregular periods: Not so much irregular, meaning I have 25-28 day cycles, but HEAVY and EXTREMELY painful…To the point of being doubled over in pain for the first two days of my cycle and curled up in a ball. It’s worse than any labor I had before I had to have my C-section. A couple of years ago, I would bleed up to 11-14 days every month and I was advised to have a hysterectomy due to the pain and bleeding. Being age 32 at the time, I refused to go that route.

5. Anxiety: I was never a very anxious person before. I have had increased anxiety, to the point I talked to my doctor about it (I was also going through a difficult time)…and was given yet another medication to try. It did help, but it was an antidepressant used for anxiety and was very hard for me to get off of once I decided I did not want to be on medication anymore.

6. Decreased energy: My energy level has dropped so much, but I just figured it was from getting older. I’ve never been a morning person, but this is much worse…it’s like constantly being tired and sluggish.

7. Feelings of doom/apprehension/despair: Some months, not all (especially a couple years back), my PMS symptoms are so severe, that it makes me think very sad thoughts…and it’s always about 2 days at the end of my cycle (which is the same point my migraines come as well…so it could be related).

8. Depression: I’ve had some bouts of what I call depression (non diagnosed) over the last few years…my “depression” is more in the form of anxiety/overwhelming feelings and wanting to sleep and not face anyone.

9. Headaches: Migraines…I used to have them in college when I was on birth control pills. Finally, when they figured out it was probably the hormones and I came off the birth control pills; I did not have any more migraines, until AFTER my tubal ligation. I’ve been on a migraine medication for over a year and use a different one if it gets out of hand. They can be debilitating.

10. Weight gain: I have had a very difficult time trying to lose my ‘baby weight’ from my last pregnancy from 2003 and tubal ligation. Although I had always been proportioned before, the worst of my weight now is around the middle.

11. GI problems: I have had reflux or heartburn since my tubal ligation as well.

I have only had one cycle since my tubal reversal, so I will be watching for much symptom relief!

A complete discussion of Post Tubal Ligation Syndrome and the stories of other PTLS patients who have undergone tubal reversal can be seen in our blog series on PTLS. The first of fourteen articles is Pain After Tubal Ligation: A Symptom of Post Tubal Ligation Syndrome? .

Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Katherine

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

My name is Andrea, and I’m a 31 year-old home schooling mother to four children.

I’m married to my partner in Christ, Jeff, who is 36. Jeff has his own CPA practice here near our home. We live in beautiful Coeur d’ Alene Idaho, where we are a very close knit Christian family.

In 2005, against the advice of my doctor and with my husband cautioning against it, I had a Filshie clip tubal ligation at the planned c-section birth of my daughter. My doctor used clips because of my age at the time of tubal ligation, as well as the fact that he believed I would want more kids based on my nature.

Soon after the birth of my daughter, I began experiencing symptoms that independently wouldn’t have been alarming, but when gathered together, had me very worried and feeling terrible. Early after the birth, I felt very sad about not having more children. At times I thought the symptoms were just because I was sad about ending my fertility. Now I know they are separate, as well as the desire to continue to have more children, even if you already have “more than normal”, is a God given desire, and NOT something BAD.As my symptoms began to mount, I began a journal of NEW symptoms for me. While one or two of these may not be abnormal, each one of these was new for me, and together made a host of symptoms.

· Period returned 3 weeks after post-partum bleeding, despite breastfeeding full time.    The earliest I had a period while breastfeeding before was 8 months!

· Cyclical migraines or cluster headaches. Typically, one in the week before my period, one upon my period leaving, and one mid-cycle. Each took up to 4 days to clear completely, and each required prescription medication. Nausea and vomiting would accompany without treatment.

· First time I couldn’t lose my baby weight through breastfeeding, diet and exercise.

· Highly emotional, and easily brought to tears or sadness.

· Extremely dry skin.

· Mid-cycle cramping and breast tenderness.

· Terrible cramping for 1-2 days of menstruation, with moderate cramping before bleeding starts, with light cramping entire period. I’m a very active woman with high pain tolerance. This cramping was enough to nearly bring me to tears.

· Bleeding so severely, I would soak a pad in an hour. My doctor suspected menstrual anemia.

· Bleeding sometimes mid-cycle. Spotting would begin on CD 23-24 and continue through 28 when heavy period would start. Bleeding would last 7 full days, with spotting another 2-3 at the end.

· Persistent yeast infections, presumably from being “damp” due to having to wear pads much of the month to catch unexpected flow.

When looking at this journal, I sought the advice of my OB/Gyn and family physician. Both doctors acknowledged tubal ligation can and often does cause painful and heavy periods. However, my family physician went a step further. She conveyed that she had heard numerous cases of women having severe problems following tubal ligation, and was fully on board in my seeking a reversal. She did hormone screening and other blood work, and my OB/Gyn performed a pelvic ultrasound to rule out endometriosis, infections, fibroids, cancers and cysts. Both doctors gave me a clean bill of health, with no other cause for my new problems. Both doctors wrote to my insurance company, requesting payment for a tubal reversal on the sole basis of Post Tubal Ligation Syndrome (PTLS).

The insurance company, a national and well-known provider, wrote back these words:

“Although a tubal ligation reversal is medically necessary for the health of the insured, tubal reversals are not covered as the code falls under fertility treatment which is excluded. *Named insurance company* will authorize payment for treatments of hormone therapy, ablation, D&C and hysterectomy.”

Obviously, at 29 years old and also seriously mourning the loss of my fertility, these were not acceptable treatments for the physical manifestations of my tubal ligation.

We began the process of searching out the best doctor to perform a tubal ligation reversal, and saving the funds to do so. Some local physician’s, including my own, perform tubal ligation reversal. However, I was unable to feel satisfied about the outcome since none maintained accurate PTLS relief and pregnancy statistics based on their own work. Doctor’s in the Seattle area also do tubal ligation reversal, as well as many other cities in the nation. The local doctor’s were going to cost us about $12,000. Even with travel from Northern Idaho, Chapel Hill Tubal Reversal Center was a more affordable, and a more highly skilled facility.

Post Tubal Ligation Syndrome Series

This is the ninth article in our fourteen part series on PTLS and associated medical conditions. The first article, Pain After Tubes Tied: A Symptom of Post Tubal Ligation Syndrome?, introduces the most common symptoms some women attribute to their tubal ligation.

Readers can also read Andrea’s after surgery follow-up story: Andrea After Tubal Ligation Reversal Surgery. In addition to telling us how she has done after her tubal ligation reversal, she also has some exciting news to share!

Our next several articles will present personal stories of some of our patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures ( women who had their tubes tied).

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Momzilla is actually Tracy.  She is a 43 year-old married, mother of three and is employed as a Senior Human Resource Manager. Tracy is married to Glenn who is a Transactional Real Estate and Business Attorney. In the previous article, Meet Momzilla, Tracy described her symptoms of Post Tubal Ligation Syndrome (PTLS).

Tracy is currently four months out from her tubal ligation reversal surgery and both she and her husband describe her recovery.

In their own words….

Tracy

“Just weeks after my reversal the first thing I noticed was that I had lost the overwhelming sense of dread that had been shadowing me. As I was still healing from the surgery I was less fatigued and more energetic. My mood and outlook were “lighter”. My emotional healing began quickly and the physical healing soon followed. As the weeks passed I noticed improvement in my hair, skin and nails. I was sleeping again and my fogginess and inability to concentrate improved. I have not had a PMS headache, dizziness or tingling in my extremities. Each menstrual cycle since the reversal has gotten progressively better and more “normal”. My exaggerated and prolonged PMS symptoms have diminished. At about 6 weeks post reversal I got my libido back and, for that, my husband is eternally grateful (LOL!). I was no longer feeling like a stranger in my own body. Aside, of course, from getting my health back, the best part of my recovery has been re-connecting with my family. I feel like I have gone from the evil “Momzilla”, tired, moody and short-tempered all the time to just plain “Mommy” again. I feel at ease again in my own skin and with life. I no longer wake up dreading what symptom might take control of me. Shortly after the surgery, Glenn said to me “Welcome back, I missed you…”. In good times and in bad, he and I have always “loved” each other, but, for the duration of time that PTLS held me hostage, we “lost” our connection to each other. After the reversal, along with my obvious physical healing came the healing of my marriage and my family. It still amazes me that, after 3 years of suffering, I could see relief from my symptoms so quickly. I hope, through this series of blogs, that more women and their families as well as their physicians can be educated about PTLS and know that a reversal can bring them new hope for restoring their health and their lives.”

Glenn

Aside from the symptoms, the tragedy of PTLS is that we could have ended up divorced if Tracy didn’t have an inquisitive mind and, after almost three years, discovered PTLS online. From my viewpoint, PTLS transformed my best friend and wife into a detached unaffectionate roommate. Since the medical community did not recognize the possible effect of the tubal ligation procedure, we did marriage counseling which, of course, was unhelpful at best and could not succeed since the cause of the problem was biological. With no other explanation available from medical “experts”, we went through a series of episodes of “blame” with pop-psychology reasons to explain disinterest, depression and other symptoms that we didn’t know were symptoms. I received some truly bad advice from well-meaning sources. Symptoms like memory loss also put a strain on day-to-day living. In the end, we made it through because we started with love, a strong relationship and mutual respect. I have to wonder how many marriages have ended without ever knowing the reason?

I hope that the data compiled by the Chapel Hill Tubal Reversal Center can be used to provide proof to the medical community of this syndrome because it could help so many families if doctors provided pre-tubal ligation counseling and recognized this a possible cause of common symptoms experienced by women.

This is the eighth article in our fourteen part series on PTLS and associated medical conditions. The first article of this series, Pain After Tubes Tied: A Symptom of Post Tubal Ligation Syndrome?, discusses the most common symptoms associated with PTLS.

Our next several articles will present stories of our patients who have sufferred from worsening menstrual, physical, and emmotional symptoms after surgical sterilization procedures ( women who had their tubes tied).
Readers can also view other patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Andrea
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join our Tubal Reversal Message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Momzilla came to us at Chapel Hill Tubal Reversal Center seeking relief of problems that occurred after her tubal ligation. Momzilla is her sign-on name for the tubal reversal message board. She is 43 years old, happily married, and has three children. She is employed as a human resource manager and her husband is an attorney.

Momzilla had her tubal ligation three years ago and she describes the gradual onset of Post Tubal Ligation Symptoms (PTLS) after her tubal ligation. We asked her if we could use her as the subject of a blog featuring several of our patients. She agreed and provided us a comprehensive list of her physical problems.

Her symptoms in her own words…

“Longer clotty periods with a day or so of flooding blood followed by nothing and then bleeding again. (My menstrual periods from the dawn of time prior to that had been regular and predictable to almost the day), horrible insomnia, light-headedness/dizziness (almost passing out on a few occasions), exaggerated PMS and mood swings, absence of libido and an aversion to sex, fatigue, a sense of dread or doom (not depression), withdrawal from my family (almost needing isolation from people), inability to concentrate, fogginess and an awful memory, tingling in extremities, very dry skin no matter how much I drink or how much lotion I used, more frequent headaches, bloating and GI issues, inability to lose my baby weight (I lost my waist), breaking hair that is more oily, breaking nails, changes in perspiration and body odor (sweating and smelling more easily), bad taste in my mouth, more sinusitis and allergies…I think that about covers it..”

She also had told us she had tingling in her legs, which required her to see a neurologist and have a brain MRI. She also had increased sugar cravings and gained 15 lbs.

Momzilla told us her story of having a tubal ligation and then noticing the onset of these symptoms. She has seen several doctors and had a variety of inconclusive tests. She found information about PTLS on the Internet and discovered Chapel Hill Tubal Reversal Center as well. She was very clear she was not getting a ligation reversal so she could have more kids. She was trying to get her body to be like it was prior to the ligation. She desired a return to her normal state.

I am happy to report Momzilla had a successful tubal ligation reversal on June 2, 2008. Her surgery went well and was performed by Drs. Berger and Monteith. She had good tubal lengths and did well in the recovery room. She was released to the local Sheraton hotel for an overnight stay and was discharged home the next morning. She has recovered without any complications.

Readers can read about Momzilla’s after surgery report: Momzilla Reveals Her True Identity.

We will also publish reports on patients who have suffered from worsening menstrual, physical, and emotional symptoms after surgical sterilization procedures (women who had their tubes tied).

We invite readers to join our Tubal reversal message board and discuss and share personal experiences with tubal ligation. We also have a dedicated PTLS forum for readers to share experiences of worsening symptoms after tubal ligation procedures.

Women come from all over the world to Chapel Hill Tubal Reversal Center for reversing tied tubes – or more correctly put in medical terms, to have a tubal anastomosis. The majority of our patients desire sterilization reversal so they may naturally conceive more children. Many others, however, have ligation reversals to feel more complete again and/or to alleviate symptoms that have occurred after their surgical sterilization procedure. These patients report new physical and psychological symptoms after undergoing tubal ligation - symptoms that have been described as Post Tubal Ligation Syndrome (PTLS).

Symptoms of Post Tubal Ligation Syndrome

There are many symptoms attributable to PTLS. The most predominant symptoms are:

• Menstrual pattern changes
• Painful periods
• Hot flashes
• Irritability
• Mood swings
• Insomnia
• Decreased sex drive
• Anxiety
• Depression
• Memory changes

Does PTLS really exist?

The existence of Post Tubal Ligation Syndrome has been very controversial within the medical community. Early medical studies suggested that some sterilized women (women who had their tubes tied) had abrupt changes in bodily symptoms after their surgical procedures. These physical and mental changes were called Post Tubal Ligation Syndrome.

PTLS has been widely talked about by both women and medical professionals. Currently, PTLS information, advice, and ‘expert’ commentary saturate the internet. Conspiracy theories are prominent. Some people even believe sterilization is being forced upon women and there is a conspiracy, or lack of serious medical counseling, regarding the symptoms of PTLS.

More recent medical research has demonstrated that women do have changes in their menstrual patterns after tubal ligation; however, these changes are not as dramatic or as widespread as have been suggested in the past.

Observations from the Tubal Reversal Center

The tubal ligation reversal experts at Chapel Hill Tubal Reversal Center provide sterilization reversal to a large number of women from across the world. We also counsel and treat a substantial number of women who attribute their worsening menstrual patterns to their tubal ligation procedures. These patients report a multitude of PTLS symptoms.

We like for our patients to be well-informed. Since women seeking relief of PTLS represent an increasing percentage of the patient population we care for, we would like to dedicate a series of informative blog articles discussing the concept of PTLS. More specifically, we would like to discuss the common medical reasons for new symptoms noticed after tubal ligation, current understanding about PTLS, and common psychological conditions which can mimic PTLS.

This is article first of a fourteen part series. Our second article in this series is Post Tubal Ligation Syndrome: Past and Present.

Readers can also view patient submitted stories about their menstrual symptoms, reasons for reversing tubal ligation, and outcomes after reversal reversal surgery. Each patient’s story is listed below:

Meet Momzilla
Meet Andrea
Meet Rebecca
Meet Praybelieving
Meet Katherine

We invite readers to join the Tubal Reversal Message Board to discuss and share their personal experiences with tubal ligation. Feel free to contribute to our PTLS forum dedicated to patients who have personal insight into worsening symptoms after undergoing tubal ligation.

Editorial Comment

The decision to add a series of articles about Post Tubal Ligation Syndrome on the Tubal Reversal Blog was prompted by requests and suggestions of many of our tubal reversal patients. Most doctors have been taught that no such entity as PTLS exists, much to the exasperation of women who are suffering from symptoms that began after a tubal sterilization. This series of blog articles will allow individuals to report about their personal experiences and case histories. Then, articles from the medical literature will be reviewed and discussed. Hopefully, this approach will help explain the discrepancy between what individual women have experienced and what medical doctors think about this complex subject. I encourage both patients and medical professionals to contribute their insights and opinions to this important series of articles.

Gary S. Berger, MD
Medical Director
Chapel Hill Tubal Reversal Center